Showing posts with label advocates. Show all posts
Showing posts with label advocates. Show all posts

Friday, April 24, 2020

Autism Answer: Gatherings and Inclusion In The Wake of COVID-19 (Dallas Pride Festival Date Change)



This article originally appeared at SexualDiversity.org

Gatherings have long played an important role for people in society. 


Yet, for some, they are more urgent and necessary than others. 


For many people in the LGBTQ community, a Pride Festival or parade, a drag show, or other similar events are the first or only place they feel accepted and included. 
Declyn being crowned Miss. Homegirl 2017 as Pa'Jama


I live in a small town not too far from Dallas, TX. My youngest son and I planned on attending the Dallas Pride Festival (perhaps volunteering as well) this year, for our first time. 


However, as with most events in the wake of COVID-19, for the health of our world the date has been rescheduled. Now, I personally approve of and appreciate this. However, I also wonder if the new date (July 25, 2020) will remain safe. And even so, what sorts of changes will be made to how we celebrate as a group.


And I confess, I do hope we make some long-lasting changes. 


It has long seemed unfortunate to me that we are aware of our contamination of each other yet we do little to make changes. We’re made to feel weak if we do not go to work sick, and we’re unlikely to get paid. We apologize when we ask to not shake hands, we make fun of folks who are overly cautious “germaphobes.” School days are counted and parents are threatened with visits from authorities if too many are missed, making staying home when sick or when we are aware of sickness in the school a dangerous option. We spread disease and viruses comfortably, even proudly. 


I believe it is healthy to get sick. And so there is no part of me that hopes we change so much after this pandemic we are frightened to touch, to reach out, to gather together. 


But, we can’t unsee what we’ve seen. And we can’t unlearn what we’ve learned. 


Well we can. But we shouldn’t unlearn it. 


If you will humor me, please step a little further into the idea of how we contaminate each other. 


It is often considered weak to listen and care about the difficulties and systemic challenges in the lives of people other than us. We are encouraged to be empathetic to a point, but when that empathy threatens to change us, change our minds, we are too often seen as weak and naïve. Easily swayed. Not strong in our convictions. 

This is dangerous. And we infect and contaminate and make each other sick with this attitude. 


Admittedly, there is a balance to be had. There is truth in not wanting to be easily talked out of your values or beliefs. But we must be willing to change them as well. It is necessary for a healthy society to continually adjust and find balance. Balance is something we continuously do, though sometimes it is clearer than other times when our balance is off. However, it is always something we are doing and should pay attention to. 


For many of us, gatherings and events, such as Pride Festivals, are nearly necessary for our mental health and happiness. But so is learning from experience (such as COVID) to make adjustments for the sake of our holistic health. 


Declyn
My son and I are looking forward to the Pride Festival in Dallas! And I expect it will not be like previous festivals, but will offer what previous festivals were there to celebrate: diversity, inclusion, and the LGBTQ culture. And that, my thoughtful reader, is our reason is for attending. 


Dallas Pride Festival in the Park – Saturday July 25, 2020 FAIR PARK


I encourage you to look up any new dates or plans for your local Pride Festivals and Events.

Monday, October 28, 2019

Autism Answer: My Sustainable Halloween Tip - Use What You Have And Discuss Disabilities

 
Pictured: My youngest brother, Rye, holding my second oldest son, Tyran. Halloween, 1996

Firstly, I encourage you to read the article I wrote several years ago for Dr. Lynette Louise ("The Brain Broad") that includes incredibly valuable and important tips here: Halloween: The Holiday Made for Autism (With These Important Tips)


Secondly, a reporter was asking for a sustainable Halloween tip the other day. Well, as you know, I'm totally into sustainability. It's groovy, man! Not only is it groovy, it will help us stay alive and not live harmful, cruel lives in the meantime. 

So, I'd love to share my tip with you as well! Because I want us to stay alive and not live harmful, cruel lives in the meantime.

My Sustainable Halloween Tip: 

Use what you have. Play dress-up rather than buying a costume. This is not only sustainable, but fun! Also, if you or your children have a disability or sensitivity, Halloween is an annual opportunity to dress-up and introduce yourself to the neighbors with your challenges in mind. Explain why you always wear the noise-canceling headphones that you cleverly included in your costume (or equally cleverly, kept incongruent to your costume), or ask for help reaching the inaccessible door while discussing how it affects your daily life, or share a story about a unique issue you have due to lack of sight or hearing. Sustainability is about making choices that can be sustained. Hence, not purchasing a costume but rather using what already is, as well as bringing your unique issues and needs out into the world on a day when doorknocking and chit-chatting is expected and encouraged, addresses sustainability both for the environment and for our culture.

My Sustainable Halloween Example: 


 
Pictured: My sister, one of my brothers (Dar), and me, dressed as a gypsy, pirate, and homeless drunk respectively, Halloween 1987ish. 

Everything we are wearing was found in mom's closet or around the house. My brother, Dar, wasn't expected to say "Trick-or-Treat" but mom did encourage him to walk up to each door, hold out his pillowcase, and offer some sort of nod or gesture of appreciation for each piece of candy. Every year Dar got more comfortable with the tradition and neighbors learned to be more comfortable with us. Dar is over 30 years old now and sometimes goes out on Halloween with his nieces and nephews and other times stays home to hand out candy. Again, it is a fantastic time of year to introduce himself and his differences to folks while feeling fun and a little less conspicuous than usual.


Sustainability matters. Taking advantage of opportunities to be sustainable with purpose and inclusion is powerful. I highly recommend it!

Have a fun, safe, sustainable, inclusive, informative, and spooky Halloween, friends!

Hugs, smiles, and love!!!
Autism Answers with Tsara Shelton (Facebook)
 

Monday, December 31, 2018

Autism Answer: A New Year Resolution in Film



I'm making a resolution to watch more movies in the upcoming year. 

I have a love of great filmmaking and have even written a screenplay myself. I actively engage in conversations specifically to share my desire for a more inclusive film industry. Yet, I don't carve out a lot of time to enjoy the films themselves. I catch myself too often worrying that movie watching is lazy. 

Oops! 

I believe the movies we make are important and of great value and yet I also think watching them is lazy? That's not congruent thinking at all! So, I will still have those conversations but I will also walk my walk by seeking and watching and recommending films that are inclusive, diverse, and entertaining. 

 
Allow me to make an inclusive film suggestion for you while we're chatting about it. Living with Lynette was written, directed, produced, and stars my mom, Dr. Lynette Louise ("The Brain Broad"). It also stars two of my brothers, me, my dad, and my niece. Oh, and the other actors and crew are friends who either have disabilities, mental health diagnosis, or family members that do. 

The Plot:  A wild and weird family is moving into their new home in the hopes of creating a more permanent life for themselves. Headed by Lynette -a strong single mother - the large family with diverse backgrounds and various mental health challenges is used to the curious stares of strangers. However, when the new neighbors begin to introduce themselves on moving day, Lynette can't help but notice that perhaps they are the strange ones. Soon she finds herself doing therapy on a catatonic neighbor, attempting to understand his exasperated ever-changing wife, and babysitting their young child, all while trying to keep the walls of her new home from being eaten and the carpets from getting stained before they've even finished moving in.

The Concept: My mom's intention is to create a special membership site that invites people to send in clips of their special needs loved one in order to be selected to be on the show. If this evolves as intended it will grow into an improvised web series involving all levels from severely challenged to high functioning individuals. As it grows, my mom will make it available for public viewing (so people no longer have to be members on the site). This is a fictional comedy based on our lives and my mom did an amazing job of keeping it funny, candid, and practically true. 

The Awards:  Living with Lynette was 2018 honorable mention winner in two categories at the International Independent Film Awards: Casting and Original Song. The song is funny and catchy, and I'm glad it was recognized. But it's the casting I'm particularly happiest about, because it is the casting that's different, important, and - well - my family! Actors with autism, bi-polar disorder, and even one man dying of cancer (my dad). It is the point of the show, to share what it is to be crazy and what it is to be normal and the subjective/invented line between the two, while including people with diagnosis and disabilities to play integral roles in the making of the show. And so we are honored for both awards but mostly so for the casting award! Thank you to the International Independent Film Awards judges! 


The show (free) on Vimeo: Living with Lynette
The show (free) on YouTube: 



I have taken the time to find books written by diverse people from various cultures, and boy has it been insightful and fun! And how funny that reading rarely feels lazy to me, when reading is done by sitting on my butt, or laying around in my bed, sipping coffee and dipping myself into a world noone around me can see. How funny that that hardly seem lazy to me while movie watching can. And yet, movie watching can be easily done as an activity, dipping many of us, together, into a world unlike our own; sparking conversations and ideas as a group. 

Well, silly me! 2019 will be filled with films I'll watch alone, with family, and with friends. As with the books I read I'll take the time to find inclusive and diverse stories (last night I watched ROMA, a fantastic movie that chronicles one year [specifically in the early 1970s] in the life of a maid in Mexico City. I HIGHLY reccomend this film which is available on Netflix!) that are guaranteed to enlighten me in surprising ways while reminding me to give attention to the important work of inclusive filmmaking. 

What fun I'm going to have keeping this resolution!!

I hope you'll join me in taking the time to direct your attention to things that matter to you. I also suggest taking a moment to reflect on possible contradictions in your life that will be fun to correct. Like engaging in inclusive storytelling! 

Happy New Year my fantastic friends!! 

Feel free to share film suggestions with me and follow along for my upcoming recommendations.

Hugs, smiles, and love!! 
Autism Answers with Tsara Shelton (Facebook)

Tuesday, November 27, 2018

Autism Answer: Freedom


I like to think about freedom. The necessity of it, the danger in it, and the challenges it offers.

But mostly, the necessity of it.

For those of us with small children, and for those of us with friends or family who have a disability or dysfunction that makes freedom even more dangerous or challenging, I feel we are still correct in caring about the necessity of freedom. We are also, however, put in a position to explore it more deeply.

If we're raising ourselves and our children with an eye on independence, and I believe most of us are, then we must allow for freedom. The two are, well, dependent on each other. 

Now, let's take a second if we may to chat about "independence" before I lose some of you and before my mom rolls her eyes at my hypocrisy. (She knows me really well and independence is not a thing I appear to value. giggle!) 

It is true, I do not highlight or seek or even see as an important goal an independence that strictly means to live on your own, pay your own bills, make your own meals, get yourself where you need or want to go, or even to dress your own self. These are all things we can strive for in our personal version of independence, but for a few of us some of these are entirely impossible and for many of us one or more of these would merely get in the way of discovering a different more fulfilling type of independence. 

For example, perhaps I want to write and produce my own movies but am so busy trying to pay all my own bills I don't have the creative energy or time. Or, perhaps I am severely autistic and many of these things are so far from my capabilities that I give up and don't seek to discover the places independence can be mine. And, of course, a gazillion possibilities in-between. 

To raise ourselves and our loved ones with an eye on independence means, to me, to seek forward motion, skill acquisition, and personal passions. It means to overcome the fears that inherently accompany trying to learn to do something we badly want to do in order to practice and believe in our ability to do it. 

And here, we meet up with our friend freedom again. 

It is necessary to have the freedom to try. It is dangerous, we can be hurt. It is challenging, we will be inconvenienced by the freedom we allow others. Yet, it is necessary. 

Let's find those places where we are not giving ourselves, or someone we love, the freedom necessary to move forward in the way they desire. Perhaps we're pushing for an independence that interrupts a possibility - for reasons of fear, an interest in fitting in, or trying to impress folks we rarely see but will be visiting over the holidays - or maybe we're merely not allowing enough freedom because we are afraid of the hurt (physical and/or emotional) that is most likely to happen when we're free to try new things. Things we're not yet good at. Particularly, things we care about being good at. 

Let's find those places and make changes. Allow for freedom. It's okay, I think, if we give ourselves limits but let's not limit ourselves. Let's not say no, or stop, when we're in unfamiliar territory only because it is unfamiliar. Or only because people are staring and pointing and judging our choices.

Freedom is dangerous. It is challenging. It is vulnerable. It is also exciting, invigorating, filled with possibilities and wonder. 

It is also necessary. 

I invite us to navigate it well and with good intentions. 

Feel free to disagree with me. ;D


But for folks who feel similarly, who feel that giving ourselves and our  loved one's freedom - despite the dangers and challenges - is a necessary goal, here's a gift for you.

My mom (Dr. Lynette Louise, aka "The Brain Broad", international brain and behavior expert) and my brother, Dar, tried out the GPS SmartSole a few years ago and were excited about the possibilities! Particularly the possibilities offered in the freedom created by the product. 

They were so excited, they partnered up!

Check out this GPS SmartSole video starring them:

 


Have a look at their website, GPS SmartSole, see if this (or any of the other products they provide) will work for you and your family.

Part of seeking freedom is seeking tools or environments that allow it. 


I hope you have a safe, fun, and free holiday season my friends!!
 
Hugs, smiles, and love!!
Autism Answers with Tsara Shelton (Facebook)

Friday, July 20, 2018

Autism Answer: The Men Who Found Me

*Author's note: I wrote this piece about five years ago. I don't remember why I wrote it. I do remember hoping it would be published somewhere by someone other than me. I do remember hoping it would be understood as valuable by someone other than me. I do remember hoping it would be published by a journal that compensates their contributors. I have submitted it several times to paying publications and have received several rejections. However, I don't believe that means it wasn't understood as valuable (though that is perfectly possible and alright with me). I believe it most likely means it was understood as not for them. That's one of the great gifts submitting work can offer. Understanding the various reasons for, and possibilities of, rejection.

This piece has been rejected several times by paying publications, but it has been accepted and adored often by me. My sons and husband have also felt the value of its message, though they have not read it. And perhaps it will be understood as valuable by you, dear reader. I would be honored if that were the case. I would be grateful if that were the case. Goodness knows that cannot be the case if I keep it tucked away hidden in a file on my computer. 

Whether or not you find this piece valuable or interesting, I hope you understand it as true and meaningful. Because though it carries with it several rejections, it absolutely is

Happy reading!
~Tsara

The Men Who Found Me



I was always there but deeply lost.


When the much older than me dark skinned mechanic, different from me in so many ways, looked adoringly at my colorful sons, helped my autistic brothers fix their cars, and held my milky white hand in his strong callused one, I knew I’d been finally found.


Admittedly, he wasn’t the first man to bring me closer to the surface. He stood in line behind a short list of important others. And they themselves had been in the position to search out the pieces of me, hidden and strewn haphazardly deep inside my container of a body, because of a long-ago man who broke me and left me hidden. 


When I was twelve my step-dad molested and disoriented me. 


He who we loved so much; he who’d stepped up and taken beautiful care of my beautiful mother, given us a home and the gift of adopted siblings, given us stability and a feeling of being powerfully protected—he had done what we knew he would never do. 


I was left lost. A jungle of lies and confusion and guilt and fear buried me deep. 


My mom was a hero, picking up the family and keeping us safe. Safer than safe; we learned to know things. My mom took impossible care of six kids on her own, strong and certain that she could discover answers that would keep us healthy. Against impossible odds—a past filled with abuse and a basket full of challenged children—she carried us to women’s shelters and safe homes, forever remaining the insistent and actively thinking student. Always aware of us children and our needs while climbing and building mountains of knowledge for our sake.  


But men were held at a distance, unpredictable and unlikely to lead to safety. We learned about men, we knew we wanted them around, but we were unable to completely trust them. Unable to learn from them or live as equals.


Leaving me lost. 


Until my first son was born. 


His dad told me he would take care of me because he thought I was appropriately pretty and young. He was looking at the container I was lost inside, and promising to buy it things. He was lying, but I wasn’t expecting much from him anyway. I had been hoping, but never expecting. 


Then I gave birth to my son. My son, who would one day become a man. And when his tiny brown wrinkly hand wrapped around my finger, and his hungry mouth hunted my breast, our love and needs locked and I knew I was in there somewhere. 


I felt him see me when I saw him. 


I began to feel found but was so deeply lost the signal was faint. 


I had another son with the same man, the one who took me to enough restaurants to keep my container impressed, and this boy was more insistent. He was almost downright rude with his demands from me.


He really encouraged me to pick up my pieces and put myself together. He would accept nothing less!


So I walked away from the man who lied and grew a little less lost while I played with my sons. 


I met a kind man, and for a time I struggled to be completely found with him too. But when I was pregnant again I pushed him away. He called me beautiful, smart, and sexy. I didn’t think I could keep that up. 


But for my third son I became more myself. More creative, silly, and snuggly.  


I could feel myself grow less lost, almost entirely aware of my path and my surroundings. The consistent sounds and sticky sweat from my jungle of guilt and fear quieted, chirping less obnoxiously in my head and heart. The path I was walking with my sons felt like my choice. I could intuitively sense something exciting and new calling me in a direction, and I began to trust myself to know it when it appeared. 


Then my mom’s car broke down. This kind, older, ridiculously different than me mechanic came to the rescue. 


At first, he didn’t see me. I tried to be noticed by flaunting my body and lips. I used the only tricks I knew, glossy and flirty. Hips swinging and bodies brushing and lips inviting, but he was avoiding and uninterested. From my place inside where I was almost found I began to consider retreating deeper into the jungle of lost, where I felt familiar. 


But instead I spoke about my sons who were visiting my sister. I put away my flirty tricks and let me talk about my boys. Something about this quiet hard working mechanic seemed to allow it. 


He was not kinder, smarter, or richer than other men. He was there, and he was good, and I was ready to be found.


Talking about my boys drew me out of hiding. My boys had me dancing and showing off
right at the surface of myself.


And that’s when the mechanic found me. He found the beautiful mom, the creative soul, the loving sister, the delighted daughter, the tentative friend, the dancing queen, the flirty girl and more.


He didn’t look at the container I was hiding in, my body and face and hair, not at first anyway. He looked at me.


And I was found. 


Had my sons not needed me I may have stayed too deeply lost for him to see. Had I not needed to find me for my sons, I may have wanted to stay lost. 


But my sons found me. 


And because of them, the mechanic found me. 


Together, the mechanic and me, we had one more son. 


A young man who will grow up having always known me. 


The mechanic and I have been happily married now for eighteen years. We’ve lived in separate homes close together, separate homes far apart, crowded in one home together, and always we’ve worked as a team. 


Over the years I’ve easily trusted him, learned from him, and we’ve lived together as equals. 

When he found me, I found him. A man to help me guide our sons out of their own jungle.


A man who will example and help them to know themselves.


The men who found me were my reason to be found. My reason to find me. And now that I know who I am, now that I’ve grown confident and comfortable with all of the pieces of me as they fit together, I know I will never be lost again.

# # #


Short Bio: Tsara Shelton is a writer of musings, a sipper of coffee, and an addict of anything story. Having learned life exploring the edges of society she finds her footing in the world through storytelling—as a mom, wife, daughter and citizen. She blogs regularly at Autism Answers with Tsara Shelton and is the author of Spinning in Circles and Learning from Myself: A Collection of Stories that Slowly Grow Up.





Twitter: @TsaraShelton