Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Wednesday, May 6, 2026

Film Review: Grace - A Short Film That Explores Agency and Disability

 This review was originally written for and published at DisabledWorld.com

 

 

Grace, film capture: actors Fiadhnait Canning (right) and Luca Malocco Mulville (left)


My soulmate and I crawled into our big bed, the back elevated to perfect film watching position, and snuggled toward each other*. Within moments we were swept into Grace - a short film that felt effortlessly beautiful and moving.

The operative word there is "felt".

There is nothing effortless about telling a story well, casting a film perfectly, lighting scenes flawlessly, meaningfully inviting an audience along on an important journey that entertains while expanding empathy.

But by grace and goodness! This short film did all that and more for me.

Grace, written and directed by Anna Rodgers, is the eponymous story of a young woman testing the limits of her autonomy and expanding its edges. Grace has Down Syndrome and stays in an assisted living home, though the opening scene is of Grace sitting at the table in her family home. Her infant niece is placed in a high chair near her and while the two of them quietly spend time in each other's company, Grace's sister and mother are busily planning the sister's wedding in the background. Due to a mastery of acting, editing, and dialogue we quickly understand that Grace has a boyfriend, is thinking of long term life with him, and hoping to raise a family - and that this is a complication for those who love her.

The entire film unfolds with such beautiful brilliance, quietly inviting audiences into these moments. I hardly knew where my space ended and Grace's began.

Grace, played with subtle perfection by actress Fiadhnait Canning, is the sort of hero I crave in my stories. She is clear about what she wants, thoughtful toward people along the way, and courageous enough to insist on a life that is hers without being unreasonably self-centered.

Everyone in this film is beautiful. I sometimes tease media for all the beautiful people, but this is a film that gets it right. Yes, everyone is attractively lit and has an appearance that is lovely to look at, but more than that, it is the beauty of their character we are watching. The crux of the matter for each person in Grace's orbit - her carers, her boyfriend, her mother - is they care about her and feel a sense of obligation because of it. These people are all invested, they all care, but it is inside our caring we most struggle to agree on actions.

While watching this twenty-five minute film I hardly spoke. For me, this is unusual. My poor soulmate almost always has to endure the joy I get in treating all media as an interactive activity, my desire to follow a thought or add my two cents. To say, "this reminds me of the time..." or "that's what I was saying yesterday..." or "can you imagine? What would you do if..."

But while watching Grace's story unfold, I was mesmerized, drawn in.

It was only later all those thoughts came tumbling out.

A "this reminds me of the time..." thought I shared with my love: there was a lesbian couple with Down Syndrome who were regulars at the donut shop I worked at when I was a teen (1990). They were comfortable displaying their love in public, taking turns buying each other coffee, holding hands and giving each other little kisses, and they told me they liked the home they lived in but not the rules. They could not sleep in the same room and were considering getting their own apartment, but were consistently being told they could not.

A "that's like what I was saying yesterday..." moment sparked for me during a scene where residents are taking part in a class where the speaker asks them to practice saying no. Encouraged to role play, they're given a scenario where they are asked out on a date and they do not want to go. Grace and a male resident play the part with fun and flair. The man asks Grace out, she says no, he asks again, she again says no - no anger or apology, and we are reminded it is a skill worth practicing. Saying no. No explanation needed, just a knowledge that it is your right and responsibility.

I loved this scene so much! For people with disabilities this is such a valuable skill to both learn and practice. They are often at the mercy of carers, told they must comply for their own good and safety, and are not often enough given space to practice the skill of knowing when they aren't safer or expected to comply, or how to handle those moments.

Yet, it's true that we all need this space, for learning and practicing. For knowing how to comfortably and confidently say no. For knowing when complying is for our good and/or our safety and for knowing when it is not.

A "can you imagine? What would you do if..." moment for me was toward the end, when Grace is in the place of drastic decision making - I so badly don't want to spoil anything so suffice it to say, she and everyone who cares about her find themselves in a life-altering situation that needs to be addressed, yet all the players have different strongly held opinions, and every opinion is expressed with perceptive insight. What would I do? If I was Grace, if I was Grace's mom, if I was Grace's boyfriend? How would I step up? I don't have one clear answer, though I know which way I lean.

In my opinion this is not only a beautiful film, wonderfully executed, but a necessary one.

On a personal note: My mom raised eight of us kids. My four adopted brothers were on the autism spectrum, and she fought for them to be seen the way I feel the filmmakers see Grace: as someone with capabilities, requiring somewhat personalized teaching, and deserving of autonomy.

When I was growing up, mom was always fighting that fight. It was messy, heartbreaking, but ultimately victorious.

For me, watching this film felt like being given the gift of knowing mom's fight was not hers alone, it was known and understood by others.

But this film also felt lovely. Something that was lacking in the extremeness of my mom's fight for my brothers' rights, the loud clashing, the wild highs and lows, when I was growing up.

No, not lacking, simply harder to see.

On another personal note: I needed this. I needed this bit of Grace.

I suspect many of you do, too.

One last thought:

Grace is all of us. She is born into a preexisting system, as she grows people who love her find additional systems of support meant not for her for but for "people like her", she is encouraged to seek some independence and skills but as her adulthood blossoms, as she blossoms, she must navigate the world by deciding who she is, what she wants, which supports to break free from.

It is a powerful time in all our lives. Particularly, that first time.

One we hope to do with Grace.

*It was not lost on me that while my love and I were laying comfortably in our big bed, we were watching Grace fight for her right to lay in one with her boyfriend.

Wednesday, May 29, 2024

Book Review: In Search of Teressa: A Journey Into The Mind Of A Woman With Many Personalities by Lynette Louise

 

 





Background: My mom wrote this book. Actually, she talked this book into audio recordings, sent them to me to transcribe, then read it to Teressa who made a few clarification requests, then made those changes and sent it to all the people talked about in the book for their thoughts and requests, then made changes, then allowed an editor and publisher to play with it, then helped design a cover, and then it was published. But, ya. My mom wrote this book.:D

My mom has been writing since my earliest memories (hers, too). She writes poetry, songs, academic abstracts and articles, books, shows, theater, and comedy shows. Almost always her stories are created with the intention to inspire and teach, to learn and grow, to surprise and submit uncommon perspectives. Almost always she writes stories based on her own life and those of us closest to her.

This new book is her first written through the lens of someone else’s life and memories.

In partnership with Teressa, a woman who has been diagnosed with dissociative identity disorder and has been suspected as having anywhere between twelve and twenty-three alters (alternate personalities), In Search of Teressa is written in two parts. 

The first part describes Teressa's memories. Her childhood, her life as a wife and mother, her attempts at creating and discovering herself as a woman via retreats, counseling, and religion. It is written from Teressa's point of view, from her idea of how it was and what was done. There is a childhood of malnutrition, alcoholism, physical illnesses, and memory loss. There is an adulthood with murder, true love, family vacations, and alters.

Her story is not told chronologically, and actually begins with the murder of her adult daughter. As readers bounce back and forth from Teressa’s later years to her early years and back again, it is reminiscent of how Teressa’s life is lived in her mind. A continuous bringing to the present slights from her past.

The second part of the book is my mom's story, alongside Teressa. It includes my brother, Dar, who is autistic and almost always at her side. My grandchildren are there. Mom interviews the people in Teressa's life and they are mostly accommodating. 

During mom's first meeting with Teressa's brother he sits in the sunshine outside of the house with the door open while mom and Teressa sit inside. It was during the COVID-19 lock-down and I suppose accommodations were the norm, yet it is a memorable scene: socially distancing siblings discussing a childhood of playing dick detective (hiding in the backseat of their drunk dad's car to see if he cheated on mom, per mom's orders), sharing one onion between them and feeling tangible guilt over not sharing with the other children, putting poop in the backyard cesspool due to broken pluming, and so many other memories. Often their memories would match in terms of what happened. Often, though, they would disagree on the reasons, the meaning, the why or message of the memories. 

My mom is an international brain and behavior expert so she is qualified to understand what is going on in the brain and how it is influenced by the people guiding it as well as by the body it is in. The hormones and chemicals as well as the story it is being told. This second part of the book is the piecing together of Teressa's truth as mom helps her find the path to becoming one unique person.

There are many parallels in the lives of both my mom and Teressa, yet the people they become have stark differences. This is something that shines throughout the book. The hand we can play in creating ourselves even as we are not in control of all the elements.

By the end of book two my mom and Teressa have made giant strides toward a unified Teressa, a happy Teressa, and made plans for ever more growth. Along the way, readers learn much about how memory works, how we are building ourselves with the beliefs we hold, how we can take advantage of the brain’s plasticity for our own benefit by purposely changing certain behaviors, and how we can be kinder to each other without being so supportive we push our loved ones deeper into unhealthy mental states.

 The entire book is fantastic. It is engaging and informative. It is poetic and scientific. It answers and asks. It is a story that makes us question our own memories as it tells us how to remember.

I highly recommend this one! 

Follow this link to view the book on Amazon: In Search of Teressa 

Hugs, smiles, and love!!